suleika jaouad what happened to will

The popular writer of the Life, Interrupted column shares an update on her health and discusses how creativity and connection help her cope with lifes challenges. I have a badly behaved rescue mutt named Oscar. In short, cancer therapy dogs primarily provide comfort and support through cancer. Could Burning Breast Pain Be a Sign of Breast Cancer? The second is Susan Sontag, who in Illness as Metaphor wrote, Everyone who is born holds dual citizenship, in the kingdom of the well and in the kingdom of the sick. For Jaouad, this split asserts itself during her senior year at Princeton, when she begins to suffer from an unbearable itch. Wanting to help, they volunteer to die early, as a way of saying: "Look! When I entered the hospital, I brought this diaper bag full of notebooks, journals, paint supplies. I was starved for stories that I could find companionship with and I bought every possible book that I could about illness and, specifically, cancer. Suleika Jaouad, is an Emmy Award-winning writer, speaker, cancer survivor and the creator of The Isolation Journals, a global movement cultivating community and creativity during hard times. "I learned that no matter how smart or caring or compassionate my doctors were, I needed to be informed, and I was going to need to learn to be my own advocate and ask those difficult questions and to push back when needed.". And so I very much try to harness that sense clarity, that experience of stripping things down to the most meaningful molecule.". Leukemia is a type of blood cancer that develops when the body produces a large amount of abnormal white blood cells, which prevent the bone marrow from producing any other type of cell, like red blood cells and platelets. Suleika Jaouad and Jon Batiste attend the 93rd Academy Awards at Union Station on April 25, 2021, in Los Angeles, California. Jaouad had a bone marrow transplant for treatment for her most recent bout of cancer. But how does this happen? Our mission is to get Southern California reading and talking. Not every conversation has to be about silver linings. The survivor's journey and hero's journey are often conflated. Then, instead of pointing up, she gestured to the street. Almost overnight, Suleika Jaouad dreams shattered just as her adult life was beginning. Use this bar to access information about the steps in your cancer journey. He The couple first met as . Transthyretin Amyloid Cardiomyopathy (ATTR-CM), Memorial Sloan Kettering Cancer Centers Caring Canine Program, Psychologist Marianna Strongin Offers Advice On Managing Anxiety as a Cancer Patient or Survivor, Prioritizing Mental Health & Acceptance After a Cancer Diagnosis. A cancer therapy dog helps a person going through cancer treatment by reducing anxiety and lifting a persons mood. I haven't painted since I was probably six or seven years old, but it felt freeing and experimental and playful. Ulin is the former book editor and book critic of the Times. The paperback of Between Two Kingdoms made The New York Times bestseller list, even though you've been too sick to promote it at all. Suleika also delighted her fans with anecdotes about snuggling with her emotional support dog. Transthyretin Amyloid Cardiomyopathy (ATTR-CM). Jaouad shared a picture of her with her service dog River, writing, Seven days of chemo, a bone marrow biopsy and a spinal tap laterRiver knows all kinds of fancy service dog stuff, but Im learning that what I prize most are her (new) lap dog skills., A post shared by Suleika Jaouad (@suleikajaouad), In another recent update, she shares a powerful new painting. Jon Batiste quietly married Suleika Jaouad, his longtime girlfriend, in February.. Jaouad, who is the author of the cancer memoir "Between Two Kingdoms," said the event happened right before . As my friend, Nadia Bolz-Weber, says, "The best antidote to shame is sunlight.". Here are some stories you dont want to miss: Christina Caron has tips for spring cleaning your brain. On top of a new, hyper awareness of germs, mask-wearing and hand-sanitizing, there was the fact that people were not able to go out or see friends or go to work, and there was so much fear and uncertainty. Such observations are particularly resonant considering the . Health's content is for informational and educational purposes only. I have been trying to let go of that anxiety of accomplishment. All rights reserved. Its most commonly used in relapsed diffuse large B-celllymphoma, but there are other lymphomas, mantle cell lymphoma for whom which patients oftentimes get and Ill autologous stem cell transplant as soon as they achieve remission. She also writes a New York Times column called Life Interrupted, which she has been writing since July 11, 2014. At first, that felt good to me. I think a lot of peopleand I haven't necessarily been above thishave the misconception that once you're given a clean bill of health, there is a rubber-band snap back to yourself, and you're good!. She says she learned her illness was back in November of last year. She featured on CBS News, NBC's Weekend Today, etc. During that time, she had the clearest sense of purpose that she ever had. I was so excited for this paperback to come out. In December, Suleika shared with those readers that the leukemia had returned. In her memoir, Jaouad wrote that when she walked into a room, cancer spoke before she could even say her first word. Register, Suleika Jaouad, 34, Wife Of Jon Batiste, 35, Gives Important Cancer Update: Seven Days of Chemo, A Bone Marrow Biopsy and a Spinal Tap, 'The Old Man' Star Jeff Bridges, 73, Was Fighting For His Life Through Cancer And Covid Says Co-Star, Being With Him Changed My Life, Outpouring of Support For 'Lord of The Dance' Star Michael Flatley, 64, Just Diagnosed With 'Aggressive' Cancer. Between Two Kingdoms is derived from a piece of Susan Sontag's 1978 critical theory, Illness as Metaphor: "Everyone who is born holds dual citizenship, in the kingdom of the well and in the kingdom of the sick. I was wondering about living your experience with cancer in public, and how high-profile people like Virgil Abloh or Chadwick Bozeman chose not to. You wrote in your newsletter that you considered whether or not to share that your cancer was back at all. Concerning her partner's net worth, Jon has an approximate net worth of about $4 million as a result of his primary occupation as an artist. The specific type of cancer will depend on the blood cell that is affected and can affect blood-producing tissuesuch as bone marrow. For three-and-a-half years, Jaouad underwent treatment for leukemia. Do you feel that sense of connection, and what do you think it's about? : How are you? The most commonly asked question and the hardest to answer honestly. Therapy dogs may help with pain management, too, as time with dogs can trigger a release of endorphins which mitigate pain and discomfort. The first time I was sick, I was in treatment for nearly four years. I believe its impossible to arrive at adulthood without facing some sort of interruption, be it an existential crisis or something as big and blinding as a life-threatening illness. I don't think she mentioned having changed Will's name but from what I gather it is indeed Seamus McKiernan as other readers already stated. Well, then check these top 5 facts you definitely didn't know: She has a rescue dog named Oscar. Leukemia is a type of blood cancer that develops when the body produces a large amount of abnormal white blood cells, which prevent the bone marrow from producing any other type of cell, like red blood cells and platelets. "As we live longer and longer, the vast majority of us will travel back and forth between these realms," she writes. I am glad she did him justice in the . What are the Treatment Options for Advanced or Blast Phase Chronic Myeloid Leukemia? Mar 20, 2022. T.P.P. No one knew the cause of her exhaustion: that her condition was progressing into cancer. This time around, I'm 33. It's the hardest question, I think, for any of us to answer honestly. He was incorrigible. However, for more severe cases of anxiety and depression, speak to a psychologist before pursuing treatment or support from a furry friend. So I hope my story invites people to reflect on the in-between moments in their own life. How are you doing today? Never want to see this again? Suleika Jaouad and her partner, Jon Batiste revealed that the couple secretly got married amid her cancer diagnosis. It was bittersweet to leave behind Christina, the nurse who came to my room and played a superfast version of Scrabble with me on her breaks, or Chandra, who was on the cleaning crew and who by the end of my stay would take half an hour to clean the floors so we could share stories. (Matt Sayles/A.M.P.A.S. Jon's here, and because I had my bone marrow transplant at the height of Omicronnot ideal timingwe had to really form our own little pod, and it's such a privilege to be surrounded by so much love and care. Grammy-winning musician Jon Batiste and New York Times bestselling author Suleika Jaouad secretly tied the knot a day before she was scheduled to . A bone marrow transplant is a treatment used for some cancers, like leukemia. Suleika Jaouad is an Emmy-winning columnist known for the Life, Interrupted column in The New York Times. She persistedshe said, Come look at this gorgeous moon! She continues about her leukemia battle, Again I told her no. This content is created and maintained by a third party, and imported onto this page to help . I want to feel normal," Jaouad would tell them. Suleika Jaouad - Net Worth 2023. And I was like, "Alright, you have my permission to step outside." "We talk about post-traumatic stress disorder (PTSD); we talk about reentry in the context of veterans returning from war or prisoners being released after a long period of incarceration, but the same is true of people surviving a traumatic illness or a traumatic experience," Jaouad said. What did you feel you were adding to it? It was a time of hope and excitement until the itch got worse and turned into six-hour naps . In addition to the itch, Jaouad developed fatigue so extreme that, after she graduated college, no amount of sleep helped. And when your bone marrow doesnt function correctly it means that you can have something happen to you like anemia. "Not in terms of my to-do list, but what do I want to feel today, who do I want to take time to be with or even just send a text message to? We have to kind of learn to move forward with them. Suleika Jaouad: What Jon didn't know was that the day before, I learned that the chemotherapy I'd been doing wasn't working. The first is Life, Interrupted, the video and text blog Jaouad began to write for the New York Times in 2012, a year after her diagnosis. 1 1.Between Two Kingdoms by Suleika Jaouad - how do you comment ; 2 2.Jon Batiste privately married Suleika Jaouad before her - Reddit; 3 3.I recently finished Suleika Jaouad's memoir "Between Two - Reddit; 4 4.Jon Batiste and Suleika Jaouad sharing life beyond cancer - Reddit; 5 5.Grammy Winner Jon Batiste, Suleika Jaouad Secretly Married Mayo Clinic. In the summer after graduating from college, Suleika Jaouad was preparing, as they say in commencement speeches, to enter "the real world.". Please sign in to save videos. I've noticed that readers, myself included, feel incredibly connected to you through Between Two Kingdoms. I believe Im on day plus-32 post transplant and Ive been out of the hospital for almost exactly a week, she tells the magazine. Suleika is now 33 and the best-selling author of Between Two Kingdoms: A Memoir of a Life Interrupted, which just came out in paperback. Instead, just be a good listener. It is an act of brute, terrifying discovery.. According to Jaouad, who is battling leukemia for a second time, her boyfriend had . I just started my third transplant chemo drug today, and its no joke and Ive been in bed all day. You can pose questions to the Goodreads community with Reader Q&A, or ask your favorite author a question with Ask the Author. Everyone was congratulating me on being done, and I felt a sense of expectation, given that I had survived, especially when so many of my cancer friends hadn't, that I should not just be living, but I should be somehow living a more beautiful, more meaningful life. We even did the wave. The itch started on the tops of her feet, eventually moving up her calves and thighs. Is it possible that exposure to the paint fumes caused this? In the present, meanwhile, the disease profoundly transforms Jaouads relationships; some friends stop coming around while others rally behind her. Of course you were dealing with love and breakups; you were a 22-year-old woman. Browse 128 suleika jaouad stock photos and images available, or start a new search to explore more stock photos and images. By signing up you agree to our User Agreement and Privacy Policy & Cookie Statement. Slower-growing leukemia seldom shows symptoms, however, quick-growing leukemia can be accompanied by many vague symptomslike fatigue, frequent infections, bruising and easy bleeding, and weight . Or you can have low platelets, which makes it possible for you to bleed easily. Between Two Kingdoms: A Memoir of a Life Interrupted". Quin is scheduled to be executed on Wednesday, May 19. I said I dont want to get out of bed, that I felt awful, that Id have to unplug my IV and it was just too much. Lets keep the conversation going. 15-Year-Old Cheerleader Thought Pain Was From Braces, But It Was Leukemia How Shes Inspiring Others Through Hard Times, Falling Off A Ladder Lands 20-Year-Old Woman In ER, Gets Leukemia Diagnosis Symptoms Doctors Missed. When I was finally discharged, they all gathered and gave me the most amazing send-off. Emily Rapp Black lost her toddler to Tay-Sachs disease. In general having a blood cancer means that your bone marrow is not functioning correctly, she explains. American Cancer Society (ACS). This question functions as lodestar, something of a guiding light. Alex Trebek is happy being an uncle figure in your life, and hes not afraid to describe cancers personal toll. I was in the hospital longer, I had more complications (than the first time) and I experienced some of the worst physical pain of my life. On her graduation day from Princeton University in 2010, Suleika Jaouad's future seemed luminous and . American Thoracic Society (ATS). Our website is not intended to be a substitute for professional medical advice, diagnosis, or treatment. I was a fetus. Jane Kopelman, who heads up Memorial Sloan Kettering Cancer Centers Caring Canine Program, said during a previous interview that theyre hoping to get more pups involved in the program because patients request them so often. I don't want to say girl. I've chosen a softer path for myself, maybe because I have had the luxury of being able to accomplish some of those thing my 22-year-old [self] desperately wanted. Grammy Award-winning musician Jon Batiste married author Suleika Jaouad in February 2022 after Jaouad was diagnosed with leukemia a second time. Because then maybe they would actually see what I'm feeling, internally," Jaouad recalled. Suleika Jaouad, 34, New York Times bestselling author of Between Two Kingdoms, has been battling leukemia for a second time and recently shared a new update with fans. Suleika Jaouad's 2021 memoir Between Two Kingdoms is the kind of book that moved me on a cellular levelthe kind I stayed up too late listening to, compulsively texted my friends about and mourned when it was over. Today at 33 years old, shes again fighting leukemia. : Between Two Kingdoms is the story of my illness and my trek through the wilderness of survivorship. She set out to meet some of the strangers who had written letters to her during her years in the hospital: a teenage girl in Florida also recovering from cancer; a teacher in California grieving the loss of her son . I had no idea who I was. Melinda Wenner Moyer has insights on the new movie Turning Red.. Moving On Is a MythBut You Can Move Forward, What is Chronic Lymphocytic Leukemia? At one point before her leukemia diagnosisafter her fatigue landed her in the hospital for a weekJaouad was diagnosed with burnout syndrome, a work-related constellation of symptoms that causes stress. 2022-08-22 23:45:36 - Paris/France. She lives with her longtime partner, the musician Jon Batiste, whom she first met when she was 13 at band camp in Saratoga Springs, N.Y. Shes also nearing the two-year anniversary of her newsletter, The Isolation Journals, which offers advice, essays and writing prompts to a community of more than 100,000 people. A conversation with Emmy-award-winning writer and cancer survivor Suleika Jaouad, led by La Steinacker, chief strategy officer at ada. This time, Im on a new chemo regimen with a drug that didnt exist even a few years ago. Speaking withVoguemagazine in an interview earlier this year, the Princeton University graduate said of her cancer, I, today, am actually doing well. Here is the key to "Between Two Kingdoms" Jaouad's disarming honesty. (They know better. What is it about painting that is bringing you joy? Copyright 2023 SurvivorNet, Inc. All Rights Reserved. When her friends would visit her in the hospital, she told them that she wanted to hear all their silly, petty gossip. He was named one of the 100 most influential individuals in the world in 2022. She shared a picture of her with her service dog River, expressing appreciation for her beloved dog. The truth is, I was in a great deal of pain and one of the side effects of the medication that I was on blurred my vision, which made it impossible for me to even write a text or read anything. After her diagnosis, Jaouad approached her disease like a reporter (her dream job at the time), seeking out sources, doing her own research, and finding other people who had received a similar diagnosis to listen and learn from them. He has been amazing throughout all of this and we're hopeful that, come April, if I'm well enough, we're going to be moving into a place together in Brooklyn and starting that long road of recovery together. Isolation is a condition that predated the pandemic and one that will continue long after it. Health.com uses only high-quality sources, including peer-reviewed studies, to support the facts within our articles. Getting healthy means listening to my body - and no longer comparing myself with other people at the gym. There's a photo of me from that first transplant where I have a vomit bucket under one arm and my laptop under the other, and I'm crying, not because, oh my God, I'm so physically miserable, but because I'm upset with how my draft is turning out and I'm scared I won't meet my deadline, which is totally ridiculous, but I think also felt good to me to have a focus other than just merely being a sick person. Jon Batiste with his wife Suleika Jaouad. I wasnt a hypochondriac, after all, making up symptoms. But a year later, faced with a grim prognosis, she realized she didn't want to wallowshe wanted to make something useful, even beautiful. Jon and His Wife, Suleika Jaouad, at the 60th Annual Grammy Awards (source: Instagram) The married couple now is very much in love, which denies all the growing rumors tagging the star as a gay man. Its really about what it means to heal what it actually takes to move forward when your life has been upended by some kind of rupture. Jon Batiste and Suleika Jaouad sharing life beyond cancer 08:52. T.P.P. And so Jaouad has signed with a literary agent and is working on a book proposal about her . After an over four-year battle including a harrowing bone marrow transplant, Jaouad wondered if she would ever rejoin the kingdom of the well. My mom is currently telling all the nurses to bring their patients to the window, to share in Lizs love bomb. Jaouad shared withHealththe details of her experience and seven things she learned from her cancer journey. There are some diseases for whom this works better than others, she said. You know, what happens when our lives are upended and we have to learn to live again?". Suleika Joauad's debu. In a strange twist of fate, around the time I relapsed, Oscar was diagnosed with a rare, aggressive form of cancer, and there was no treatment for it. Throughout this time, Jaouad kept second-guessing herself by thinking, They have medical degrees. I see patients all the time in the hospital who don't have visitors and I feel so keenly aware of that. Following treatment, every time she coughed, saw a new bruise, or got a call from her doctor's office, Jaouad was filled with anxiety. In addition, she is also an advocate and . She was given a 35% chance of survival. Join our community book club. She recently shared an update on Instagram, saying she completed a round of chemo and had a bone marrow biopsy. "The idea of striving for some beautiful, perfect state of wellness? And, most recently, Suleika celebrated World Cancer Day on 5 February 2021, sharing she's overcome cancer. For example, just in terms of motherhood, my cancer left me with all kinds of short and long-term side effects, one of them being infertility, and I was sad and I was angry and I didn't feel inspiring or brave. But she was far from able to do that. : Oh, Oscar. Myriam Schrz It took a while for me to even warm up to Suleika. And it was a journey that Jaouad wrote about in her memoir, Between Two Kingdoms: A Memoir of a Life Interrupted. By his side through it all has been his wife, Suleika Jaouad. I felt so supported, so comforted, so loved. While it may be more uncomfortable to have the tougher talks, Jaouad said they can help validate any fears or guilt that both parties might be carrying. Suleika Jaouad avoids sentimentality but manages to convey the depth of the emotional turmoil that illness can bring into our lives."Siddhartha Mukherjee, author of The Emperor of All Maladies "In a book bubbling with ambition and impeccable skill, it is what Suleika Jaouad does with courage and secondary characters that is simply once . Jon Batiste on yksi sukupolvensa lahjakkaimmista ja monipuolisimmista muusikoista. They know things we don't know.) Whether you're the sick person or the loved one of someone struggling with illness, turn the focus away from the usual platitudes and messages of positivity and be candid about vulnerable feelings you might think you need to hide. Jaouads point is that we never fully get better, just as we were never fully well in the first place. I, today, am actually doing well. Even my lips looked drained of life force., When Jaouad is diagnosed, her first response is relief. If you say or do something awkward, rude or out of line, don't pretend that it never happened. I write in the book that "to swim in the ocean of not knowing, this is my constant work." Her book's title borrows from a Susan Sontag essay, "Illness as Metaphor," describing, in Jaouad's words, "how we all have dual citizenship in the kingdom of the sick and the kingdom of the well.". And being treated like a regular person rather than a person with cancer helped her better deal with her illness. They are rites of passage, and, rather than dreaded or rushed through, they should be honored. I have a walker right now. Find out what happened to them and the cancer update in 2022, in this article. April 4, 2022 12:56pm. But the hardships didn't end once treatment did. Did you turn to painting more than writing because you've made a career of writing, and it doesn't hold the same appeal of release? Oscar got me through so much through heartbreak and through the unexpectedly difficult period after I finished treatment. Our youngest participant that we know of is 6, our oldest 95. I decided to reprise both, and I invited some of the most inspiring authors, musicians, community leaders and unsung heroes I know to write a short essay and a journaling prompt. In fact, the week the book came out, I was in the worst pain I've ever been in. It's so incredibly rare, I think less than 1% of patients, according to my doctor, relapse 10 years after a bone marrow transplant. And scientific evidence around depression and cancer show that treating depression positively impacts cancer treatment. Doru Paul, MD, is a board-certified oncologist and hematologist. The first time, I think you were working furiously? Colleen Murphy is a senior editor at Health. Suleika Jaouad, is an Emmy Award-winning writer, speaker, cancer survivor and the creator of The Isolation Journals, a global movement cultivating community and creativity during hard times. Obviously, that hits very hard for me right now. I am waiting to have my first post-transplant biopsy. So I think its safe to say I re-entered treatment with a lot of fear, both for the short term and the long term. 2023 Cond Nast. Diagnosed at 22 with myeloid leukemia, she spent four years in the country of the sick and dying before returning to the landscape of the well. Suleika Jaouad's 2021 memoir Between Two Kingdoms is the kind of book that moved me on a cellular levelthe kind I stayed up too late listening to, compulsively texted my friends about and . Suleika Jaouad is an Emmy-winning columnist known for the Life, Interrupted column in The New York Times. I love that you shared about your romantic relationships in Between Two Kingdoms, because that can be something that people don't share candidly about. To highlight this porousness, she reveals how cancer changed her family dynamics. Vogue may earn a portion of sales from products that are purchased through our site as part of our Affiliate Partnerships with retailers. Given a one-in-three chance of survival, Suleika Jaouad overcame leukemia in her 20s, documenting her nearly-four-year endurance of chemotherapy and her desi. The writer says how shes filled my whole windowsill with LED candles (which I think is beautiful, like a votive altar in a church, though my nurses have told me its a little alarming because every time they pass my room they think its on fire). I itched during my part-time job at the campus film lab, she tells us. This is where aids like cancer therapy dogs can play a tremendous role. Not just my world, but my partners world and my familys world completely imploded. Suleika Jaouad, who was 22 when she learned she had leukemia, has been told she is in remission, but said she felt far from healthy at age 26. Ashley Woo. As a reader and as a lifelong bookworm, that sense of connection is one of the most special feelings, where you feel seen or understood or just weirdly entwined with someone through a page. But its also true that so much has changed for the better in the decade since I was first diagnosed. Vogue: First of all, how are you doing? In general having a blood cancer means that your bone marrow is not functioning correctly, she explains. I couldn't talk, because I had a side effect of chemotherapy called mucositis, a scarring of the throat and the mouth that makes it difficult to even swallow or eat, let alone do press interviews like this one. Vogue spoke with Jaouad by phone this week about Between Two Kingdoms, creativity through illness, navigating her relapse with her partner, Oscar-winning musician Jon Batiste, by her side, and what it means to her now to live in the unknown. S.J. S.J. Suleika is a journalist and author, whose memoir Between Two . However when it comes to autobiographies, the line disappears where the author becomes the work. At 22, Suleika Jaouad battled myeloid leukemia. You don't have to be a capital-w writer or capital-a artist. The other thing I know to be crucial is cultivating community in times like these. Leukemia is a term used to describe several types of cancer of the blood cells. How does he fit into your story now? Not one of the medical professionals she'd been seeing had mentioned this risk to her. Jon Batiste is one of the most talented and versatile musicians of his generation. A post shared by Suleika Jaouad (@suleikajaouad), But my mom is quite the general, writes Jaoad, and eventually she got me up and over to the window. In a way, I was blissfully ignorant the first time. Suleika Jaouad at Memorial Sloan Kettering Cancer Center in New York City on March 5, 22 days after her second bone marrow transplant. "We're in real time making meaning and processing this changing world. The books title has a pair of antecedents. But is there really a divide between health and illness? It mires us in eternal dissatisfaction to be well now is to learn to accept whatever body and mind I currently have.". Beyond Isolation. Jaouad shared a picture of her with her service dog River . Once her treatment was done, Jaouad felt as though she should eagerly and gratefully get back into the groove of life. "The next day, when I brought it up with themthat was my first moment of really inserting myself in those conversations. Does it still sit well with you to have been as open as you were in the book about the ins and outs of your relationship? Read an edited version of our conversation below. She writes, pictured with partner Batiste, First 72 hours in the bone marrow transplant unit: co-sleeping in a tiny hospital bed, painting, prank calling (includingby requesta nurses boyfriend), blood draws and bags of chemo, hospital room choreographies and hallway laps (14 = a mile), and never not rubbing my newly bald head., Jaouad had a bone marrow transplant. To fight the disease, Suleika underwent years of chemotherapy, enrolled in clinical trials and received a bone marrow transplant, before she was declared cancer-free three years later. "And so there was this sense that I had to somehow prove just how serious my symptoms were.". With her unending treatments finally behind her, she wrote, "I find myself on the threshold between an old familiar state and an unknown future. Suleika Jaouad and Jon Batiste attend New York Premiere of "A Quiet Place" on April 2, 2018 in New York City.

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